@prefix adms: <http://www.w3.org/ns/adms#> .
@prefix dcat: <http://www.w3.org/ns/dcat#> .
@prefix dcatap: <http://data.europa.eu/r5r/> .
@prefix dct: <http://purl.org/dc/terms/> .
@prefix foaf: <http://xmlns.com/foaf/0.1/> .
@prefix rdfs: <http://www.w3.org/2000/01/rdf-schema#> .
@prefix vcard: <http://www.w3.org/2006/vcard/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

<https://fdp.healthdataspace.amsterdam/dataset/1bf9e2bb-ff03-4929-9504-eda398d6c3ad> a dcat:Dataset ;
    dcatap:applicableLegislation <http://data.europa.eu/eli/reg/2025/327/oj> ;
    dct:accessRights <http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC> ;
    dct:creator [ a foaf:Agent ;
            dct:identifier <https://ror.org/03xqtf034> ;
            vcard:hasEmail <mailto:repository@nki.nl> ;
            foaf:homepage <https://www.nki.nl/> ;
            foaf:name "Nederlands Kanker Instituut - Antoni van Leeuwenhoekziekenhuis" ] ;
    dct:description ""@en,
        "Hebon, initiated by NKI-AVL in 1997, is an active multidisciplinary collaboration of Clinical Genetics and laboratory departments of all University Medical Centers in the Netherlands and the Netherlands Cancer Institute, conducting a dynamic prospective cohort study for members of breast and ovarian cancer families. Currently 60,000  persons are enrolled. Hebon collects DNA test outcome results, self-reported risk factor data via questionnaires, pedigree data, mammography and MRI data, treatment data through linkage with the Netherlands Cancer Registry and Palga, vital status through linkage with the Dutch municipality register (BRP) and cause of death data via linkage with the Dutch Central Bureau of Statistics."@nl ;
    dct:identifier <https://www.hebon.nl> ;
    dct:issued "2026-05-12T09:45:05.007489"^^xsd:dateTime ;
    dct:language <http://id.loc.gov/vocabulary/iso639-1/en> ;
    dct:modified "2026-05-13T11:32:43.653762"^^xsd:dateTime ;
    dct:provenance [ a dct:ProvenanceStatement ;
            rdfs:label ""@en,
                ""@nl ] ;
    dct:publisher [ a foaf:Agent ;
            dct:identifier <https://ror.org/03xqtf034> ;
            vcard:hasEmail <mailto:repository@nki.nl> ;
            foaf:homepage <https://www.nki.nl/> ;
            foaf:name "Nederlands Kanker Instituut - Antoni van Leeuwenhoekziekenhuis" ] ;
    dct:title ""@en,
        "The nationwide HEreditary Breast and Ovarian cancer study the Netherlands (Hebon)"@nl ;
    adms:versionNotes ""@en,
        ""@nl ;
    dcat:contactPoint [ a vcard:Kind ;
            vcard:fn "Hebon study" ;
            vcard:hasEmail <mailto:hebon@nki.nl> ] ;
    dcat:distribution <https://fdp.healthdataspace.amsterdam/distribution/287318d7-34e9-456d-b6ac-6fbed2c77539> ;
    dcat:keyword "Breast Cancer"@nl,
        "Cancer Genetics"@nl,
        "Epidemiology"@nl,
        "Hereditary Breast and Ovarian Cancer"@nl,
        "Ovarian Cancer"@nl ;
    dcat:qualifiedAttribution [ a dcat:Attribution ;
            dcat:agent [ a foaf:Agent,
                        foaf:Organization ;
                    dct:identifier "https://www.hebon.nl" ;
                    foaf:homepage <https://www.hebon.nl> ;
                    foaf:mbox <mailto:hebon@nki.nl> ;
                    foaf:name "Hebon study" ] ;
            dcat:hadRole <https://standards.iso.org/iso/19115/resources/Codelists/gml/CI_RoleCode.xml#Originator> ],
        [ a dcat:Attribution ;
            dcat:agent [ a foaf:Agent,
                        foaf:Organization ;
                    dct:identifier "https://orcid.org/0000-0002-2228-429X" ;
                    foaf:homepage <https://www.nki.nl/research/find-a-researcher/groupleaders/marjanka-schmidt/> ;
                    foaf:mbox <mailto:mk.schmidt@nki.nl> ;
                    foaf:name "Marjanka K. Schmidt" ] ;
            dcat:hadRole <https://standards.iso.org/iso/19115/resources/Codelists/gml/CI_RoleCode.xml#principalInvestigator> ] ;
    dcat:theme <http://publications.europa.eu/resource/authority/data-theme/HEAL> .

<http://data.europa.eu/eli/reg/2025/327/oj> a <http://data.europa.eu/eli/ontology#LegalResource> .

<http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC> a dct:RightsStatement .

<http://publications.europa.eu/resource/authority/file-type/HTML> a dct:MediaTypeOrExtent .

<https://definities.geostandaarden.nl/dcat-ap-nl/id/waardelijst/licenties/niet_open> a dct:LicenseDocument ;
    dct:type <http://purl.org/adms/licencetype/UnknownIPR> .

<https://fdp.healthdataspace.amsterdam/distribution/287318d7-34e9-456d-b6ac-6fbed2c77539> a dcat:Distribution ;
    dct:description ""@en,
        ""@nl ;
    dct:format <http://publications.europa.eu/resource/authority/file-type/HTML> ;
    dct:issued "2026-05-13T11:32:43.678224"^^xsd:dateTime ;
    dct:language <http://id.loc.gov/vocabulary/iso639-1/en> ;
    dct:license <https://definities.geostandaarden.nl/dcat-ap-nl/id/waardelijst/licenties/niet_open> ;
    dct:modified "2026-05-13T11:32:43.662794"^^xsd:dateTime ;
    dct:rights [ a dct:RightsStatement ;
            rdfs:label ""@en ],
        <https://www.hebon.nl/wp-content/uploads/2026/03/2023-HOP-Verklaring.pdf> ;
    dct:title ""@en,
        "HEreditary Breast and Ovarian cancer study the Netherlands (Hebon)"@nl ;
    dcat:accessURL <https://www.hebon.nl/hop-application/> ;
    dcat:byteSize "1000000000"^^xsd:nonNegativeInteger .

<https://www.hebon.nl/hop-application/> a rdfs:Resource .

<https://www.hebon.nl/wp-content/uploads/2026/03/2023-HOP-Verklaring.pdf> a dct:RightsStatement .

<http://id.loc.gov/vocabulary/iso639-1/en> a dct:LinguisticSystem .