Oncology Life Study

We have established a hospital-based data-biobank, entitled OncoLifeS (Oncological Life Study: Living well as a cancer survivor) to link routinely collected clinical data with preserved biological specimens and quality of life assessments. The OncoLifeS data-biobank has been designed to facilitate cancer research by providing clear phenotypic and genotypic data in a clinical context.

Observational study involves collecting routine clinical data about carefully selected patient groups, and this can be combined with genetics and omics data from biological specimens. Indeed, understanding cancer heterogeneity, its temporal evolution over time, and the outcomes of guided treatment depend on accurate data about patient characteristics and their clinical management. Linking these routine clinical data to preserved biological specimens can then enable reproducible research capable of discovering biomarkers of cancer and/or treatment response, evaluating personalized treatment approaches, and increasing patient awareness. Including quality of life assessments may provide relevant information on how cancer and its treatment affects the subjective well-being of patients.

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Veld	Waarde
Titel	Oncology Life Study
Omschrijving	We have established a hospital-based data-biobank, entitled OncoLifeS (Oncological Life Study: Living well as a cancer survivor) to link routinely collected clinical data with preserved biological specimens and quality of life assessments. The OncoLifeS data-biobank has been designed to facilitate cancer research by providing clear phenotypic and genotypic data in a clinical context. Observational study involves collecting routine clinical data about carefully selected patient groups, and this can be combined with genetics and omics data from biological specimens. Indeed, understanding cancer heterogeneity, its temporal evolution over time, and the outcomes of guided treatment depend on accurate data about patient characteristics and their clinical management. Linking these routine clinical data to preserved biological specimens can then enable reproducible research capable of discovering biomarkers of cancer and/or treatment response, evaluating personalized treatment approaches, and increasing patient awareness. Including quality of life assessments may provide relevant information on how cancer and its treatment affects the subjective well-being of patients.
Keywords	Anaplastic Thyroid... Neuro-Oncology Informed consent Pathology Cancer care Biological specimens Radiological findings Gastric cancer Neuro Endocrine Tumors Clinical departments Comorbidities Radiation Oncology Pathological diagnosis Protected workspace Omics data Pathological findings Clinical outcome Lifestyle Neuro Endocriene Carcinomen PACS Picture... radiological imaging barrett oesophagus Biomaterial collection Colorectal cancer Colon cancer Randomized... Biomaterials lynch syndrome Clinical and... Dutch Medical... Software for data analysis Tissue oncology ISO certification Genotypes Human Tissue and... Phenotypic data Observational research Oral and... Haematology Participation rate Guided treatment testicular oncology Artificial... Advantage Database Server Cancer incidence Research proposal Big-data analytics Oncological care Hepato pancreato... Medical Oncology Genetics Biomarkers Esophageal cancer Data management Cancer research Obstetrics and Gynaecology head and neck oncology Quality of life assessments Availability of... Personalized treatment Storage Withdrawn consent Genotypic data Risk factors Clinical data collection Data access Oncology Surgery Biomaterial processing Dermatological cancer Long-term outcome data Patient characteristics Quality of life data lung oncology Patient reported data Treatment response Cancer Research Centre Adolescents and... Hereditary... Neuroendocrine tumors Imaging data Dutch Trial Register gynecological oncology Quality of care Quality of life European reference... Translational research Patient-reported data Testicular germ-cell tumors Breast cancer cancer patient Tumor working groups Data protection Longitudinal Data collection Age-related disease Sarcoma Imaging data handling Bone and soft tissue cancer Routine clinical care Hematologic Cancer Rare tumors LifeStore facility Otorhinolaryngology Mortality Clinical data Data-biobank access Clinical context European General... Phenotypes
Contact points	Contact point 1 URI http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Contacts/firstName=Janny&lastName=Nagel&resource=OncoLifeS Naam Janny Nagel Name (translations) Email j.nagel@umcg.nl Identifier URL
Publisher	Publisher 1 URI http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=UMCG&resource=OncoLifeS Naam University Medical Center Groningen Name (translations) Email researchdatacatalogue@umcg.nl URL https://www.umcg.nl/ Type Publisher note Publisher type Identifier https://ror.org/03cv38k47
Creator	Creator 1 URI http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=UMCG&resource=OncoLifeS Naam University Medical Center Groningen Name (translations) Email researchdatacatalogue@umcg.nl URL https://www.umcg.nl/ Type Publisher note Publisher type Identifier https://ror.org/03cv38k47 Creator 2 URI http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=Treant%20Zorggroep&resource=OncoLifeS Naam Treant Zorggroep Name (translations) Email info@treant.nl URL https://www.treant.nl/ Type Publisher note Publisher type Identifier https://ror.org/01tm5k604 Creator 3 URI http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=OZG&resource=OncoLifeS Naam Ommelander Ziekenhuis Groningen Name (translations) Email info@ozg.nl URL https://www.ommelanderziekenhuis.nl/ Type Publisher note Publisher type Identifier https://ror.org/02mh2ah12
Landing page	https://umcgresearch.org/w/oncolifes
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Identifier	https://doi.org/10.34760/5f5b7ff62dd52
Frequency	http://publications.europa.eu/resource/authority/frequency/NEVER
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Spatial coverage	Spatial coverage 1 URI http://publications.europa.eu/resource/authority/country/NLD Label Geometry Bounding Box Centroid
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Access rights	http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC
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Theme	http://publications.europa.eu/resource/authority/data-theme/HEAL
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Applicable legislation	http://data.europa.eu/eli/reg/2022/868/oj
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Number of records for unique individuals.	10000
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URI	http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Resources/id=OncoLifeS